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DESCRIPTION oF WORKPLAN

We encompassed our specific objectives in two strategic areas: 
  1. Research coordination, by
    • Developing strategies to collect population based data
    • Assessing potential biomarkers for ME/CFS
    • Defining a standardized clinical diagnosis for ME/CFS
    • Coordinating efforts to determine the social impact of ME/CFS and to appraise the economic burden of the disease
  2. Capacity building, by
    • Involving early carer investigators (ECIs)
    • Establishing communication links with industrial organisations, especially small/medium-sized enterprise (SMEs).
    • Disseminating research findings
    • Such objectives will be pursued by the EUROMENE working groups  (WGs)
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The working groups

Epidemiology

Establishment of joint open epidemiological platform for Action.




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biomarkers

Development of panel to allow synergistic use of individual biomarker depositories
towards a common biomarker factory, supporting digitalisation in biomarker deployment and big
data role in ME/CFS research.
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socio-economics

Estimate the burden of ME/CFS to society and provide long-term trend estimates for societal impact.



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Clinical research enablers and diagnostic criteria

Integrate the European research with global efforts for up-scaled improved ME/CFS patient management via platform cross-talk and joint activity planning.
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Communication

Capacity increase in ME/CFS research, career pathway visualisation for ECIs.




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Dissemination and exploitation

Impact multiplication of the Action.




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DELIVERABLES

Survey on ME/CFS including epidemiology, diagnosis and health/social care in Europe from participating countries and from ECDC datasets (Month – 12);


To be delivered
Report on existing ME/CFS biobanks, deployment and access, data availability and restrictions (Month - 12 );



To be delivered
Survey for capacity development target groups: PhD students/candidates, ECIs, young principal investigators, researchers, clinicians, health policy makers (Month – 6)

To be delivered