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SOcio-economics WORKING GROUP

TASKS FOR THE FIRST PERIOD OF THE PROJECT

  • Survey clinical criterions used in EU countries to set-up diagnosis of ME/CFS ;
  • Analyse existing clinical criterions guidelines in order to find-out optimal criteria set allowing excluding over-diagnostic and un-diagnostic;
  • Survey in EU countries existing data on neurological picture of ME/CFS (including association with similar diseases and symptoms, like fibromyalgia)
  • Analyse the used ME/CFS treatment and its efficacy/safety in order to fined-out optimal treatment approaches lowering severity of clinical course.

Our Mission

Objective:
to estimate the burden of ME/CFS to society and provide long-term trend estimates for
societal impact
  • Task 1: To survey European countries existing data on economic loss due to ME/CFS;
  • Task 2: To develop approaches to calculate direct economic loss due to ME/CFS;
  • Task 3: To develop approaches to calculate indirect economic burden due to ME/CFS;
  • Task 4: To provide integrated outcome assessment framework;
  • Task 5: To organize two meetings per year (could be also teleconferences) to discuss and analyse
    economic loss due to the ME/CFS in order to optimise models of prevention in health and economy
    aspects.
Milestones
  • Survey data on direct and indirect economic loss due to ME/CFS in Europe M6;
  • First estimate and outcome assessment presented M36.

DELIVERABLES

The economic burden of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a comprehensive summary of the existing evidence

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