12 March 2020

8.45 – 9.15

Registration  

9.15 – 9.25

Opening Remarks and Welcome

Modra Murovska, COST Action Chair

Ilmārs Stonāns, Head of Research Strategy, RSU

Maija Bundule, COST National coordinator, Latvia

SESSION 1 - ME/CFS epidemiology

Chair: Eliana Lacerda

9.25 – 9.50

Fernando Estévez-López

Epidemiology of ME/CFS in Europe: past, present and future

9.50 – 10.30

Katherine S. Rowe

What do young people find helpful in their management? Findings from a long term follow up study of 784 young people

10.30 – 10.45

Joanna Słomko, Pawel Zalewski

Prevalence and characteristics of CFS/ME in Poland

10.45 - 11.00

Kathleen Mudie

Considerations of ME/CFS biobanks and bio-repositories within EUROMENE

11.00 – 11.15

Henrik Nielsen

HYPOTESIS: We underestimate the risk of chemicals in water and food in ME/CFS

11.15 – 11.45

Coffee Break 

SESSION 2 - ME/CFS socio-economics

Chair: Derek Pheby/Uldis Berķis

11.45 – 12.05

Derek Pheby/Uldis Berķis

Problems in determining the economic impact of ME/CFS in Europe

Uldis Berķis

Recommendations of the working group on the development of a Europe-wide consensus approach to the economic evaluation of ME/CFS; questions and answers

12.05 – 12.30

Diāna Arāja

Investigating the availability of data on ME/CFS patients in Latvia

12.30 – 14.00

Lunch 

SESSION 3 - ME/CFS biomarkers

Chair: Modra Murovska

14.00 - 14:15

Carmen Scheibenbogen

Biomarker in ME/CFS

14.15 – 14.30

Carmen Scheibenbogen

Marker for Autoimmunity in ME/CFS

14:30 – 14.45

Evelina Shikova-Lekova

Chronic viral infections and ME/CFS 

15.45 – 15.00

Bhupesh Prusty

HHV-6 reactivation mimics mitochondrial fragmentation phenotype as seen in the serum of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients

18.00 -  21.00

Dinner

13 March 2020

SESSION 4 - ME/CFS clinical research

Chair: Jerome Authier/Eliana Lacerda

10.00 – 10.15

Eliana Mattos Lacerda

Diagnostic criteria for Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) – Recommendations from the EUROMENE’s Clinical Working Group

10.15 – 10.30

Shennae O’Boyle

How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS

10.30 – 10.45

Caroline Kingdon

Including the housebound patient severely affected by ME/CFS in research: a compassionate approach

10.45 - 11.15

Coffee break

11.15 – 11.30

Sławomir Kujawski

The impact of whole-body cryotherapy upon cognitive function in myalgic encephalomyelitis/chronic fatigue syndrome patients. Preliminary studies

11.30 – 12.00

Šimons Svirskis

Cost innovation grant (CIG) application “App and web platform for ME/CFS patients self-empowerment and disease management”

12.00 – 12.15

Closing remarks and farewell

12.15 – 13.30

Lunch

13.30 – 18.00

Management Committee meeting