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Final global conference “Common strategy on research of ME/CFS”

Preliminary Program

12 March 2020

9.00 – 9.30

Registration  

9.30 – 9.40

Welcome, Vice-rector Agrita Kiopa

Opening Remarks COST Action Chair Modra Murovska 

SESSION 1 - ME/CFS epidemiology

Chair: Eliana Lacerda

 

  9.40 – 10.10

Fernando Estévez-López

Epidemiology of ME/CFS in Europe: past, present and future

10.10 – 10.50

Katherine S Rowe

Keynote presentation (to be determined)

10.50 – 11.05

Joanna Słomko, Pawel Zalewski

Prevalence and characteristics of CFS/ME in Poland

11.05 - 11.20

Eliana Lacerda

Prevalence and characteristics of chronic fatigue syndrome/myalgic encephalomyelitis in London

11.20 – 11.40

Coffee Break 

SESSION 2 - ME/CFS biomarkers

Chair: Modra Murovska

 

11.40 – 12.10

Carmen Scheibenbogen

ME/CFS – Biomarker 2020 

12.10 – 12.40

Karl Tronsted

Metabolic dysregulation in ME/CFS

12.40 – 12.55

Franziska Sotzny

Marker for autoimmunity

12.55 – 13.10

Evelina Shikova-Lekova

Chronic viral infections and ME/CFS 

13.10 – 13.25

Bhupesh Prusty

Marker for metabolic dysfunction

13.25 – 14.20

Lunch 

SESSION 3 - ME/CFS socio-economics

Chair: Derek Pheby

 

14:20 - 14:50

Derek Pheby

Problems in determining the economic impact of ME/CFS in Europe

14:50 - 16:20

Panel discussion – Recommendations of the Working Group on the development of a Europe-wide consensus approach to the economic evaluation of ME/CFS;  questions and answers

16:20 - 16:35

Diāna Arāja

Investigating the availability of data on ME/CFS patients in Latvia

16:35 - 16:50

John Cullinan

Incorporating the patient perspective when estimating the economic impact of ME/CFS

16:50 - 17:05

Xia Wang, Derek Pheby

The costs of ME/CFS: An overview of the world literature

19.00 -

Dinner

13 March 2020

SESSION 4 - ME/CFS clinical research

Chair: Jerome Authier

 

09.30 – 09.50

Jerome Authier

Overview on works done during COST action and presentation of recommendations

09.50 – 10.20

Vicky Whittemore

Organization of an ideal Reference Center for Evaluation and Treatment of patients with chronic fatigue

10.20 – 10.35

Eliana Lacerda

Diagnostic criteria for ME/CFS

10.35 – 10.50

(speaker tbd)

Functional explorations

10.50 – 11.05

Jose Alegre-Martin

Therapeutic approaches in ME/CFS

11.05 – 11.20

Ruud Vermeulen

presentation (to be determined)

11.20 – 11.35

tbd

The best one of the abstract submitted by attendants to the conference. 

11.35 – 11.50

tbd

The best one of the abstract submitted by attendants to the conference. 

11.50 – 12.00

Closing remarks and farewell

12:00 – 13.00

Lunch

 

 

13.00 – 18.00

Management Committee meeting