YoucanHelp

cliniCal research enablers And DIAGNOSTIC CRITERIA WORKING GROUP

TASKS FOR THE FIRST PERIOD OF THE PROJECT

  • Survey in EU countries existing data on economic loss due to ME/CFS;
  • Analyse existing clinical criterions guidelines in order to find-out optimal criteria set allowing excluding over-diagnostic and un-diagnostic;
  • Develop approaches to calculate direct economic loss due to ME/CFS.

Our Mission

Objective:
to Integrate the European research with global efforts for up-scaled improved ME/CFS patient management via platform cross-talk and joint activity planning
  • Task 1: To survey clinical criteria used in European countries to diagnose ME/CFS;
  • Task 2: To analyse existing clinical criteria guidelines and to recommend an optimal criteria set to minimise over- and under-diagnosis;
  • Task 3: To assess the efficacy/safety of available ME/CFS treatments in order to recommend optimal treatment approaches, aiming to decrease severity of clinical course;
  • Task 4: To develop a proposal for standardizing clinical diagnosis in collaborative global manner: to organize two meetings per year (could be also teleconferences) to discuss and analyse clinical diagnostic criteria of ME/CFS, including clinical demonstrations; to make 2 visits to international centres and discuss the progress in establishing standardised diagnosis and multicenter involvement.
Milestones
  • Survey data on clinical criteria currently used in the European countries M4;
  • Set of standardized diagnosis proposed M48.

DELIVERABLES

Common strategy protocol for ME/CFS diagnosis;



To be delivered
Protocol and guidelines for ME/CFS subgroups detection according to the presence of symptoms and potential biomarkers variety;.

To be delivered
Synchronised guidelines for management/treatment of ME/CFS.



To be delivered
s